Tag: TLT4CF

Empower, educate and inform on integrative medicine for Cystic Fibrosis

Integrative Care: A mother’s point of view.

By Louise Byrne http://louisebyrnebooks.com/index.html Ava Li was diagnosed in 2008, a week before I turned 40. She was our first and only child and although the news broke our hearts at the time, there was some element of relief to know that we had been correct all along in feeling that something was awry. Because…
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CF-MUDDA: An Integrative Story of Cystic Fibrosis

CF MUDDA – My StoryBy – Faye Upston  http://cfmudda.blogspot.ie/ So my life began much like anybody else on Aug 5th 1980. I am the youngest of 4 siblings. My parent had me vaccinated at 6 months old for measles, mumps & rubella. Everything changed from that point on. I became ill, very ill. Hospitalised for…
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Cystic Fibrosis – An Integrative Approach – by Lydia Daly

As a 20 year old CF sufferer, I have spent my fair share of time in and out of hospitals from a young age. I was diagnosed, later than normal, at the age of 5. I was wrongly diagnosed with asthma by my GP at the age of 3 and attended an asthma clinic until…
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Buteyko breathing method – an aid to improving gas transfer in Cystic Fibrosis

Cystic Fibrosis is a condition that mainly affects the respiratory and digestive systems in the human body. The CFTR (cystic fibrosis transmembrane conductance regulator) is a protein found in the human body that regulates the movement of salt ions and water across membranes in the body. The CFTR gene is responsible for the expression of…
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Groundbreaking research could improve lives of people with Cystic Fibrosis

Groundbreaking new research into the potential health benefits of a martial art could helpimprove the lives of youngsters who have one of the most common hereditary lifethreatening diseases in Britain and Ireland.The study will explore how tai chi can help people with cystic fibrosis to manage their condition and enjoy a better quality of life.Professor…
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A Path Less Conventional

I was born with Cystic Fibrosis and lost my younger brother to this life threatening genetic condition. For over quarter of a century I was a mind numbing robotic disciple of Western medicine, bowing to the latest wonder drug to improve aerosol respiration to improving my weight levels to staving off infections. I was a walking pharmacy. I complied with everything the CF team presented me with and duly embraced their treatments of Cystic Fibrosis without thought or question. Just thinking that it will keep me strong and good life force, gave me no reason to rock the proverbial boat. As I got older though, I started to become prone to more and more chest infections, no longer were oral antibiotics hitting and nipping the infection in the bud. From oral medications, I was now being treated more and more through the use of Intravenous antibiotics. The use of intravenous medication started becoming a bi-annual affair.

Organic Foods – Are They Worth It?

Ever find yourself in the produce section at the supermarket staring down two colorful apples wondering which one is worthy of making its way into your grocery cart? Both apples look the same but one has that familiar USDA Organic sticker plastered on it. One things for sure they definitely aren’t priced the same.

With an average cost of 10%-40% higher[1] are organic foods worth it? Do they have more nutritional value? And does this make a difference to your overall health? I invite you to read further as I help you get to the bottom of all this organic talk so that you can make the decision that feels the best for you. Writes: Dustin Rudolph PharmD

End of Year 2010 for the TLT4CF!

This year has being a whirlwind of new & old events for the Tracie Lawlor Trust for Cystic Fibrosis. A few new events went a head this year, Olive Mcgraths “Tracie’s walk” in which 70 people walked from Castlebridge to Wexford town, along it’s beautiful keys & half foot-paths on the way in.

Charity Challenge 2010

This year’s charity challenge took place on the 25th of April. Nine teams of four set out on this gruelling run, row & cycle. Spirits were high before the teams set off, a few kind words of encouragement & indeed a few pranks as one girls team decided to “jock” the opposing boys team member before they set off! The poor lad took off & kept pulling up his shorts almost to chest hight, just to be sure they weren’t going anywhere this time.

Roscrea Head Shave by Maria Phlean

We organized a fundraiser in the stand pub Roscrea Co. Tipperary on the 16th of April 2010. It consisted of five people getting their head shaved, 3 lads & 2 girls took part. A man who hadn’t shaved his beard in 22 years also decided to shaved bare for a great cause!