Tracie Lawlor Trust for Cystic Fibrosis

Charity Number: CHY18193

Our Progress

Details the progress and achievements of the Tracie Lawlor Trust for Cystic Fibrosis to date

Latest Research

Links and details of the latest research into integrative medicine for Cystic Fibrosis by the TLT4CF

Patients Assistance

The Patients Assistance fund is open based on available funds to help those with CF to engage in Integrative medicine

Our Top Blog/News

Our events gallery, Blog/news and
How to support us!

Click on the button for gallery selection or the pictures for latest event pictures!

More insights into what we do

Below are some more links to various sections of the Trust site to stay up to date be sure to check out the latest events and pictures from previous events, while also having a read of the latest news/blog stories.

Gallery

Click the link provided to view pictures from the latest events and from previous events be sure to have a look through old events too.

News/Blog

Full news updates and blog stories from the past and present can be viewed by clicking the link here or above, be sure to check it out!

Latest Events

Upcoming events in aid of the Tracie Lawlor Trust for Cystic Fibrosis, time, dates and how you can support! We are always grateful for volunteers

Books

A list of some books that were written by people with Cystic Fibrosis and royalities are donated to the Tracie Lawlor Trust for Cystic Fibrosis.

Cystic fibrosis-Children and adults Tai Chi study (CF-CATS II)

CF-CATS II

BACKGROUND:

Cystic fibrosis (CF) is a genetic disorder affecting respiratory and digestive systems. People with CF experience physical symptoms; cough, poor lung ventilation, recurrent infections, poor weight gain, diarrhoea, and malnutrition, as well as lower quality of life. Tai Chi, a Chinese form of meditative movement, may help with the symptoms of CF and help people with CF to exercise. However, there is very little research in this area.

Location(s)

London South Bank University and the Royal Brompton

CENTER

Cystic Fibrosis center Royal Brompton

Published

26 May 2016 PMID: 26015075

Full article online

https://link.springer.com/article/10.1007/s11655-015-2150-1

Complementary Symptom Management for Cystic Fibrosis

Complementary Symptom Management for Cystic Fibrosis (Volume 1) Kindle Edition

This book produced by the Natural Health Research Institute (NHRI) and Tracie Lawlor Trust for cystic fibrosis (TLT4CF) on complementary symptom management for Cystic Fibrosis (CF) is meant to bring together some of the most widely used complementary treatments for CF and establishes a solid evidence base for the expanding role of alternative approaches within the integrative medical field.

Association with

Natural Health Research Institute

Author(s)

Tatjana Djakovic M.S. (Author), Phd. Paul Quinton (Contributor), M.D. David M. Orenstein (Contributor), John Mark M.D. (Editor), Leonid Ber M.D. (Technical Editor)

Published

2017 USA edition: Kindle: https://www.amazon.com/Complementary-Symptom-Management-Cystic-Fibrosis/dp/0692904018

Edition EU/World

Kindle: https://www.amazon.co.uk/Complementary-Symptom-Management-Cystic-Fibrosis-ebook/dp/B07CFTSD4J

Help us contunie our work!

What we provide!

Below you will find our major areas of assitance and research and how you can help us continue to provide these essential services until one day we are not needed

Patients Assistance

This fund offers patients financial aid in all integrative medical aspects e.g. gym, Tai Chi, supplements

Help us continue our work!

To help us continue to be able to spread awarness and fund integrative medical research please support

Latest and Current Research

Applications, updates and completed research funded by the TLT4CF

Latest News

Check out our latest news and reserach from the wider Cystic Fibrosis community, please share and if you have a suggestion please let us know!

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Mind-Body in-depth COVID-19 (P.3)

Here we will take a look deeper into the evidience and how we can use mind body techniques during SARS-CoV-2 outbreak and beyond that may help improve a person with Cystic Fibrosis (PWCF) mental health.

Read more

COVID-19 Local Support Helplines

Local Authority Community Response Number Carlow County Council 1800 814 300 Cavan County Council 1800 300 404 Clare County Council 1890 252 943 Cork City Council 1800 222 226 Cork County[…]

Read more

CF-CATS Research by TLT4CF FREE Training video

Guide to using the CF YouTube videos and e-booklet. – final Not to be taken as medical advice please see disclaimer     Credits   Help us keep providing this[…]

Read more

Contact us

Drop us a line with some feedback and or suggestions which are always welcome, we are alwyas looking to improve and for new ideas or support!

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Our Team

Our core members and directors are made up of varying skillsets who all volunteer their own time and effort free to ensure we can the deliever the best quality information, education, and science to those with Cystic Fibrosis

Philomena Lawlor

Director/Secretary

Mother of Tracie and career for two children with Cystic Fibrosis Philomena also has experience as a pharma tech, knitting and in retail.

Joseph Lawlor

Media relations/SAB

Younger brother of Tracie and a person with CF himself. Joseph is former overall winner of person of the year, attended Newcastle school of excellence in soccer, and holds a BSc Neuroscience from UCD.

Collette Corish

Director/SAB

A close friend of Tracie for years with extensive experience within the pharmaceutical industry, holding a BSc Biotechnology from DCU currently working for Janssen Biologics as LM API Technical Owner

TJ Mc Donald

Director/SAB

TJ Mc Donald is a Computing lecturer at Waterford Institute of Technology (WIT) with nearly 30 years of experience in the IT sector. He has a degree and Masters in Computing from WIT and a PhD from Trinity College Dublin. TJ specializes in Databases, Data mining, Data management and Business Intelligence. He has co-chaired the Health Informatics research group at WIT and been involved in numerous research projects. In recent times his research focus has been on communities and voluntary organisations utilisation of IT to support and empower their members.

Ian Lawlor

Director/Chairperson/Graphic Design

Father of Tracie and to two CF children. Has extensive experience in the printing and graphic industry with over 40 years’ experience in Graphic design using Quark, Adobe suits. Currently working Irish Times

Michelle Smith

Visual Artist/event volunteer

Trained in horse riding, instruction and equinenursing, Michelle has over 10 years experience in the industry working with special needs. Also extensive experience as a visual artist curretly 

Brian Lawlor

Director

Brian brother of Tracie has BA in hospitality management and received most successful graduate from WIT, currently General Manager at The Carriagehouse at Adare Manor

Nicola Murphy

Director/SAB

Research Assistance, currently with UCD Estates Services as a Supervisor in Student Residences. Nicola has experience working for several years as an Advocate for One in Four. She has training in Health Psychology, Applied Psychology, Addiction and Art Therapy.