Tag: Alternative health and CF

Empower, educate and inform on integrative medicine for Cystic Fibrosis

Complementary Symptom Management for Cystic Fibrosis (for healthcare professionals)

This booklet summaries the evidence into a systems approach addressing the most commonly affected organs in those with CF and provides some complementary management options which may be effective. The booklet also ventures into CF related diabetes occurring more often and becoming a significant burden within the CF community.

Research into Acupuncture for the Treatment of Cystic Fibrosis in Teenagers and Young Adults

Up to 59% of patients with Cystic Fibrosis (CF) experience significant pain and discomfort that may decrease their quality of life. The research we are conducting at Stanford University School of Medicine and Lucile Packard Children’s Hospital Stanford, generously funded by the Tracie Lawlor Trust for CF, is investigating whether acupuncture can help teens and…
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Dutch Magic Factory – Sam’s Story –

*Sam’s journey toward CF complementary and integrative medicine is told here in her own words, be sure to check out her blog for more updates and news http://dutchmagicfactory.blogspot.ie/ We at the TLT4CF are grateful for Sam for letting us share her story to inspire other parents to empower themselves with knowledge and work together and…
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Journey into Integrative Medicine – Mika McDonald

Mika, a 26 year old ecologist and student of herbalism shares in her own words, her journey with Cystic Fibrosis and integrative medicine. In many ways, CF has been a great gift, though one with many struggles and hardships. I have gained so much intellectually and spiritually from this disease, and there is no question…
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Integrative Care: A mother’s point of view.

By Louise Byrne http://louisebyrnebooks.com/index.html Ava Li was diagnosed in 2008, a week before I turned 40. She was our first and only child and although the news broke our hearts at the time, there was some element of relief to know that we had been correct all along in feeling that something was awry. Because…
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CF-MUDDA: An Integrative Story of Cystic Fibrosis

CF MUDDA – My StoryBy – Faye Upston  http://cfmudda.blogspot.ie/ So my life began much like anybody else on Aug 5th 1980. I am the youngest of 4 siblings. My parent had me vaccinated at 6 months old for measles, mumps & rubella. Everything changed from that point on. I became ill, very ill. Hospitalised for…
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Cystic Fibrosis – An Integrative Approach – by Lydia Daly

As a 20 year old CF sufferer, I have spent my fair share of time in and out of hospitals from a young age. I was diagnosed, later than normal, at the age of 5. I was wrongly diagnosed with asthma by my GP at the age of 3 and attended an asthma clinic until…
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A Path Less Conventional

I was born with Cystic Fibrosis and lost my younger brother to this life threatening genetic condition. For over quarter of a century I was a mind numbing robotic disciple of Western medicine, bowing to the latest wonder drug to improve aerosol respiration to improving my weight levels to staving off infections. I was a walking pharmacy. I complied with everything the CF team presented me with and duly embraced their treatments of Cystic Fibrosis without thought or question. Just thinking that it will keep me strong and good life force, gave me no reason to rock the proverbial boat. As I got older though, I started to become prone to more and more chest infections, no longer were oral antibiotics hitting and nipping the infection in the bud. From oral medications, I was now being treated more and more through the use of Intravenous antibiotics. The use of intravenous medication started becoming a bi-annual affair.