Tag: Ireland CF

Empower, educate and inform on integrative medicine for Cystic Fibrosis

Complementary Symptom Management for Cystic Fibrosis (for healthcare professionals)

This booklet summaries the evidence into a systems approach addressing the most commonly affected organs in those with CF and provides some complementary management options which may be effective. The booklet also ventures into CF related diabetes occurring more often and becoming a significant burden within the CF community.

Research into Acupuncture for the Treatment of Cystic Fibrosis in Teenagers and Young Adults

Up to 59% of patients with Cystic Fibrosis (CF) experience significant pain and discomfort that may decrease their quality of life. The research we are conducting at Stanford University School of Medicine and Lucile Packard Children’s Hospital Stanford, generously funded by the Tracie Lawlor Trust for CF, is investigating whether acupuncture can help teens and…
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Dutch Magic Factory – Sam’s Story –

*Sam’s journey toward CF complementary and integrative medicine is told here in her own words, be sure to check out her blog for more updates and news http://dutchmagicfactory.blogspot.ie/ We at the TLT4CF are grateful for Sam for letting us share her story to inspire other parents to empower themselves with knowledge and work together and…
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TLT co-funded researcher at Harvard Uni tackles Pseudomonas aeruginosa resistance

  By Sara Leiman post graduate student at Harvard University, USA Pseudomonas aeruginosa infections are the leading cause of mortality for cystic fibrosis (CF) patients . Work over the past decade has demonstrated that the danger of P. aeruginosa infections rests not only in this bacterium’s genetic resistance to many antibiotics, but also in its…
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Integrative Care: A mother’s point of view.

By Louise Byrne http://louisebyrnebooks.com/index.html Ava Li was diagnosed in 2008, a week before I turned 40. She was our first and only child and although the news broke our hearts at the time, there was some element of relief to know that we had been correct all along in feeling that something was awry. Because…
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Cystic Fibrosis – An Integrative Approach – by Lydia Daly

As a 20 year old CF sufferer, I have spent my fair share of time in and out of hospitals from a young age. I was diagnosed, later than normal, at the age of 5. I was wrongly diagnosed with asthma by my GP at the age of 3 and attended an asthma clinic until…
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End of Year 2010 for the TLT4CF!

This year has being a whirlwind of new & old events for the Tracie Lawlor Trust for Cystic Fibrosis. A few new events went a head this year, Olive Mcgraths “Tracie’s walk” in which 70 people walked from Castlebridge to Wexford town, along it’s beautiful keys & half foot-paths on the way in.

Irish Cycle 2008 by Sarah Murphy

On Saturday 5th April 2008 about 130 cyclists set off from UCD in Dublin for a 140 km Charity Cycle to raise much needed funds and awareness for Cystic Fibrosis sufferers. The event was dedicated to the memory of the late Tracie Lawlor who passed away last November from Cystic Fibrosis.