News/Blog

Empower, educate and inform on integrative medicine for Cystic Fibrosis

Dutch Magic Factory – Sam’s Story –

*Sam’s journey toward CF complementary and integrative medicine is told here in her own words, be sure to check out her blog for more updates and news http://dutchmagicfactory.blogspot.ie/ We at the TLT4CF are grateful for Sam for letting us share her story to inspire other parents to empower themselves with knowledge and work together and…
Read more

TLT co-funded researcher at Harvard Uni tackles Pseudomonas aeruginosa resistance

  By Sara Leiman post graduate student at Harvard University, USA Pseudomonas aeruginosa infections are the leading cause of mortality for cystic fibrosis (CF) patients . Work over the past decade has demonstrated that the danger of P. aeruginosa infections rests not only in this bacterium’s genetic resistance to many antibiotics, but also in its…
Read more

Journey into Integrative Medicine – Mika

Mika, a 26 year old ecologist and student of herbalism shares in her own words, her journey with Cystic Fibrosis and integrative medicine. In many ways, CF has been a great gift, though one with many struggles and hardships. I have gained so much intellectually and spiritually from this disease, and there is no question…
Read more

Patient’s Assistance Fund

Tracie Lawlor Trust Patient Assistance fund was set up to directly help Cystic Fibrosis (CF) patients avail of integrative treatments. The fund has helped purchase treatments for CF’s ranging from exercise bikes, gym memberships, to acupuncture and supplements, all of which have aided in improving the quality of life for people with CF. Recently the…
Read more

Tai Chi and Clare

Tai Chi and Clare Meleady  *About Tai Chi and how it helped you??* From doing tai chi I have noticed many things that have changed in my life and in my body and mind. The most important is that I have become more aware of my breath and breath deeper then I would have previous.…
Read more

Integrative Care: A mother’s point of view.

By Louise Byrne http://louisebyrnebooks.com/index.html Ava Li was diagnosed in 2008, a week before I turned 40. She was our first and only child and although the news broke our hearts at the time, there was some element of relief to know that we had been correct all along in feeling that something was awry. Because…
Read more

CF-MUDDA: An Integrative Story of Cystic Fibrosis

CF MUDDA – My StoryBy – Faye Upston  http://cfmudda.blogspot.ie/ So my life began much like anybody else on Aug 5th 1980. I am the youngest of 4 siblings. My parent had me vaccinated at 6 months old for measles, mumps & rubella. Everything changed from that point on. I became ill, very ill. Hospitalised for…
Read more

Cystic Fibrosis – An Integrative Approach – by Lydia Daly

As a 20 year old CF sufferer, I have spent my fair share of time in and out of hospitals from a young age. I was diagnosed, later than normal, at the age of 5. I was wrongly diagnosed with asthma by my GP at the age of 3 and attended an asthma clinic until…
Read more

Buteyko breathing method – an aid to improving gas transfer in Cystic Fibrosis

Cystic Fibrosis is a condition that mainly affects the respiratory and digestive systems in the human body. The CFTR (cystic fibrosis transmembrane conductance regulator) is a protein found in the human body that regulates the movement of salt ions and water across membranes in the body. The CFTR gene is responsible for the expression of…
Read more

Groundbreaking research could improve lives of people with Cystic Fibrosis

Groundbreaking new research into the potential health benefits of a martial art could helpimprove the lives of youngsters who have one of the most common hereditary lifethreatening diseases in Britain and Ireland.The study will explore how tai chi can help people with cystic fibrosis to manage their condition and enjoy a better quality of life.Professor…
Read more