Here we will take a look deeper into the evidience and how we can use mind body techniques during SARS-CoV-2 outbreak and beyond that may help improve a person with Cystic Fibrosis (PWCF) mental health.
The following document comes from the Center of Integrative Medicine at the University of Arizona, USA and is republished with thanks to Professor John Mark and many thanks to the Integrative Medical Center in the University of Arizona, USA.
It is of utmost importance to consult with your healthcare team if you have any symptoms of COVID-19 (refers to the disease, SARS-CoV-2 refers to the virus itself see here), it is also as important during this time to ensure you take all medications prescribed, do your air-way clearance and exercise, get a good nights… Read more
Up to 59% of patients with Cystic Fibrosis (CF) experience significant pain and discomfort that may decrease their quality of life. The research we are conducting at Stanford University School of Medicine and Lucile Packard Children’s Hospital Stanford, generously funded by the Tracie Lawlor Trust for CF, is investigating whether acupuncture can help teens and… Read more
*Sam’s journey toward CF complementary and integrative medicine is told here in her own words, be sure to check out her blog for more updates and news http://dutchmagicfactory.blogspot.ie/ We at the TLT4CF are grateful for Sam for letting us share her story to inspire other parents to empower themselves with knowledge and work together and… Read more
Tai Chi and Clare Meleady *About Tai Chi and how it helped you??* From doing tai chi I have noticed many things that have changed in my life and in my body and mind. The most important is that I have become more aware of my breath and breath deeper then I would have previous.… Read more
By Louise Byrne http://louisebyrnebooks.com/index.html Ava Li was diagnosed in 2008, a week before I turned 40. She was our first and only child and although the news broke our hearts at the time, there was some element of relief to know that we had been correct all along in feeling that something was awry. Because… Read more
CF MUDDA – My StoryBy – Faye Upston http://cfmudda.blogspot.ie/ So my life began much like anybody else on Aug 5th 1980. I am the youngest of 4 siblings. My parent had me vaccinated at 6 months old for measles, mumps & rubella. Everything changed from that point on. I became ill, very ill. Hospitalised for… Read more
As a 20 year old CF sufferer, I have spent my fair share of time in and out of hospitals from a young age. I was diagnosed, later than normal, at the age of 5. I was wrongly diagnosed with asthma by my GP at the age of 3 and attended an asthma clinic until… Read more
Cystic Fibrosis is a condition that mainly affects the respiratory and digestive systems in the human body. The CFTR (cystic fibrosis transmembrane conductance regulator) is a protein found in the human body that regulates the movement of salt ions and water across membranes in the body. The CFTR gene is responsible for the expression of… Read more