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More insights into what we do
Below are some more links to various sections of the Trust site to stay up to date be sure to check out the latest events and pictures from previous events, while also having a read of the latest news/blog stories.
Cystic fibrosis-Children and adults Tai Chi study (CF-CATS II)
CF-CATS II
BACKGROUND:
Cystic fibrosis (CF) is a genetic disorder affecting respiratory and digestive systems. People with CF experience physical symptoms; cough, poor lung ventilation, recurrent infections, poor weight gain, diarrhoea, and malnutrition, as well as lower quality of life. Tai Chi, a Chinese form of meditative movement, may help with the symptoms of CF and help people with CF to exercise. However, there is very little research in this area.
Location(s)
London South Bank University and the Royal Brompton
CENTER
Cystic Fibrosis center Royal Brompton
Published
26 May 2016 PMID: 26015075
Full article online
https://link.springer.com/article/10.1007/s11655-015-2150-1
Complementary Symptom Management for Cystic Fibrosis
Complementary Symptom Management for Cystic Fibrosis (Volume 1) Kindle Edition
This book produced by the Natural Health Research Institute (NHRI) and Tracie Lawlor Trust for cystic fibrosis (TLT4CF) on complementary symptom management for Cystic Fibrosis (CF) is meant to bring together some of the most widely used complementary treatments for CF and establishes a solid evidence base for the expanding role of alternative approaches within the integrative medical field.
Association with
Natural Health Research Institute
Author(s)
Tatjana Djakovic M.S. (Author), Phd. Paul Quinton (Contributor), M.D. David M. Orenstein (Contributor), John Mark M.D. (Editor), Leonid Ber M.D. (Technical Editor)
Published
2017 USA edition: Kindle: https://www.amazon.com/Complementary-Symptom-Management-Cystic-Fibrosis/dp/0692904018
Edition EU/World
Kindle: https://www.amazon.co.uk/Complementary-Symptom-Management-Cystic-Fibrosis-ebook/dp/B07CFTSD4J
Help us contunie our work!
What we provide!
Below you will find our major areas of assitance and research and how you can help us continue to provide these essential services until one day we are not needed
Patients Assistance
This fund offers patients financial aid in all integrative medical aspects e.g. gym, Tai Chi, supplements
Help us continue our work!
To help us continue to be able to spread awarness and fund integrative medical research please support
Latest and Current Research
Applications, updates and completed research funded by the TLT4CF
Latest News
Check out our latest news and reserach from the wider Cystic Fibrosis community, please share and if you have a suggestion please let us know!
new linkPandemic Patient’s Assistance: Cambridge Pro Mask Application
Temp Patient’s assistance Pandemic Cambridge Pro Mask Application. Please fill in the form and return to (see bottom of the form) with all the completed details. Masks cannot[…]
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Mind-Body in-depth COVID-19 (P.3)
Here we will take a look deeper into the evidience and how we can use mind body techniques during SARS-CoV-2 outbreak and beyond that may help improve a person with Cystic Fibrosis (PWCF) mental health.
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COVID-19 Local Support Helplines
Local Authority Community Response Number Carlow County Council 1800 814 300 Cavan County Council 1800 300 404 Clare County Council 1890 252 943 Cork City Council 1800 222 226 Cork County[…]
Read moreOur Team
Our core members and directors are made up of varying skillsets who all volunteer their own time and effort free to ensure we can the deliever the best quality information, education, and science to those with Cystic Fibrosis
Philomena Lawlor
Director/Secretary
Mother of Tracie and career for two children with Cystic Fibrosis Philomena also has experience as a pharma tech, knitting and in retail.
Joseph Lawlor
Media relations/SAB
Younger brother of Tracie and a person with CF himself. Joseph is former overall winner of person of the year, attended Newcastle school of excellence in soccer, and holds a BSc Neuroscience from UCD.
Collette Corish
Director/SAB
A close friend of Tracie for years with extensive experience within the pharmaceutical industry, holding a BSc Biotechnology from DCU currently working for Janssen Biologics as LM API Technical Owner
TJ Mc Donald
Director/SAB
TJ Mc Donald is a Computing lecturer at Waterford Institute of Technology (WIT) with nearly 30 years of experience in the IT sector. He has a degree and Masters in Computing from WIT and a PhD from Trinity College Dublin. TJ specializes in Databases, Data mining, Data management and Business Intelligence. He has co-chaired the Health Informatics research group at WIT and been involved in numerous research projects. In recent times his research focus has been on communities and voluntary organisations utilisation of IT to support and empower their members.
Ian Lawlor
Director/Chairperson/Graphic Design
Father of Tracie and to two CF children. Has extensive experience in the printing and graphic industry with over 40 years’ experience in Graphic design using Quark, Adobe suits. Currently working Irish Times
Michelle Smith
Visual Artist/event volunteer
Trained in horse riding, instruction and equinenursing, Michelle has over 10 years experience in the industry working with special needs. Also extensive experience as a visual artist curretly
Brian Lawlor
Director
Brian brother of Tracie has BA in hospitality management and received most successful graduate from WIT, currently General Manager at The Carriagehouse at Adare Manor
Nicola Murphy
Director/SAB
Research Assistance, currently with UCD Estates Services as a Supervisor in Student Residences. Nicola has experience working for several years as an Advocate for One in Four. She has training in Health Psychology, Applied Psychology, Addiction and Art Therapy.