Tag: Tracie lawlor trust research

Empower, educate and inform on integrative medicine for Cystic Fibrosis

Complementary Symptom Management for Cystic Fibrosis (for healthcare professionals)

This booklet summaries the evidence into a systems approach addressing the most commonly affected organs in those with CF and provides some complementary management options which may be effective. The booklet also ventures into CF related diabetes occurring more often and becoming a significant burden within the CF community.

Research into Acupuncture for the Treatment of Cystic Fibrosis in Teenagers and Young Adults

Up to 59% of patients with Cystic Fibrosis (CF) experience significant pain and discomfort that may decrease their quality of life. The research we are conducting at Stanford University School of Medicine and Lucile Packard Children’s Hospital Stanford, generously funded by the Tracie Lawlor Trust for CF, is investigating whether acupuncture can help teens and…
Read more

Dutch Magic Factory – Sam’s Story –

*Sam’s journey toward CF complementary and integrative medicine is told here in her own words, be sure to check out her blog for more updates and news http://dutchmagicfactory.blogspot.ie/ We at the TLT4CF are grateful for Sam for letting us share her story to inspire other parents to empower themselves with knowledge and work together and…
Read more

TLT co-funded researcher at Harvard Uni tackles Pseudomonas aeruginosa resistance

  By Sara Leiman post graduate student at Harvard University, USA Pseudomonas aeruginosa infections are the leading cause of mortality for cystic fibrosis (CF) patients . Work over the past decade has demonstrated that the danger of P. aeruginosa infections rests not only in this bacterium’s genetic resistance to many antibiotics, but also in its…
Read more

Integrative Care: A mother’s point of view.

By Louise Byrne http://louisebyrnebooks.com/index.html Ava Li was diagnosed in 2008, a week before I turned 40. She was our first and only child and although the news broke our hearts at the time, there was some element of relief to know that we had been correct all along in feeling that something was awry. Because…
Read more

Buteyko breathing method – an aid to improving gas transfer in Cystic Fibrosis

Cystic Fibrosis is a condition that mainly affects the respiratory and digestive systems in the human body. The CFTR (cystic fibrosis transmembrane conductance regulator) is a protein found in the human body that regulates the movement of salt ions and water across membranes in the body. The CFTR gene is responsible for the expression of…
Read more

Groundbreaking research could improve lives of people with Cystic Fibrosis

Groundbreaking new research into the potential health benefits of a martial art could helpimprove the lives of youngsters who have one of the most common hereditary lifethreatening diseases in Britain and Ireland.The study will explore how tai chi can help people with cystic fibrosis to manage their condition and enjoy a better quality of life.Professor…
Read more