Complementary Symptom Management for Cystic Fibrosis (for healthcare professionals)

Complementary Symptom Management for Cystic Fibrosis

By Tatjana Djakovic M.Sc

Co-authors Paul Quinton PhD, David M. Orenstein M.D., John Mark M.D., Leonid Ber M.D.

“This book produced by the Natural Health Research Institute (NHRI) and Tracie Lawlor Trust for cystic fibrosis (TLT4CF) on complementary symptom management for Cystic Fibrosis (CF) is meant to bring together some of the most widely used complementary treatments for CF and establishes a solid evidence base for the expanding role of alternative approaches within the integrative medical field. The vast and varying complementary and integrative health field categories can make it daunting for a healthcare professional to have adequate ease to access evidence based integrative medicine easily.
This booklet summaries the evidence into a systems approach addressing the most commonly affected organs in those with CF and provides some complementary management options which may be effective. The booklet also ventures into CF related diabetes occurring more often and becoming a significant burden within the CF community.
Mental health problems, which often occur in those with debilitating disease, are also discussed in relation to those with CF. The booklet also notes where there is a lack of evidence in certain areas and is keen to acknowledge this fact while providing a clear and concise evidence based approach to the reader.

Also includes a upper safety limit table on all discussed herein.”

Where to buy worldwide on kindle please follow the link listed and add to cart

https://www.amazon.co.uk/dp/B07CFTSD4J    (Kindle – Ireland/UK/rest of the world).

 

For USA customers please go here Link: 

https://www.amazon.com/Complementary-Symptom-Management-Cystic-Fibrosis/dp/0692904018/ref=tmm_pap_swatch_0?_encoding=UTF8&qid=&sr=  for paper back edition (USA only).

 

If you would like a paper back copy (outside of USA) please follow instructions below:

Go to “Just Giving” here: https://goo.gl/lwn5bM and donate as applicable.

 

Price €30 for the book, postage within Ireland €3 rest of the world €5.50 as it currently stands.
We cannot post or sell to the USA as NHRI sell the book there.
For a paperback make a donation through “Just Giving” here

  • €33 donation for postage within Ireland.
  • €35.50 donation for postage to rest of the world (excluding USA)

Include your name and be sure NOT to click “hide donation amount”.

Screenshot your donation, then mail us on our Facebook “Tracie Lawlor Trust for Cystic Fibrosis” or send an email to info (((AT)) tracielawlortrust.com please remove brackets and use the symbol for “at” before emailing.
Include a screenshot of your donation, name and your mailing address.

 

As all the tools we use don’t cost us and we are all volunteers this is why it is slightly awkward but saves on admin!! So again donations received go back into C.F. assistance, awareness and CAM research.

Research into Acupuncture for the Treatment of Cystic Fibrosis in Teenagers and Young Adults

Up to 59% of patients with Cystic Fibrosis (CF) experience

Brenda Golianu, MD, Associate Professor of Anesthesiology, Perioperative & Pain Medicine
Brenda Golianu, MD, Associate Professor of Anesthesiology, Perioperative & Pain Medicine

significant pain and discomfort that may decrease their quality of life. The research we are conducting at Stanford University School of Medicine and Lucile Packard Children’s Hospital Stanford, generously funded by the Tracie Lawlor Trust for CF, is investigating whether acupuncture can help teens and young adults with CF improve their pain and sleep. Our overall goal is to determine if acupuncture is a safe, feasible and effective integrative medicine approach that may improve CF patients’ pain and quality of life.

We, Dr. Brenda Golianu, an anesthesiologist, and Dr. Ann Ming Yeh, a gastroenterologist, are leading this pilot study, with a larger cross-disciplinary team. We are both physicians and certified medical acupuncturists, and have completed fellowships in Integrative Medicine at the University of Arizona. Medical acupuncture has been used for many years to help alleviate chronic pain in various parts of the body. However, few studies have been conducted to examine the efficacy of medical acupuncture in reducing the pain or other symptoms of discomfort experienced by teens and young adults with CF.

We are investigating whether a regimen of one medical acupuncture treatment per week for four weeks could be effective in improving young CF patients’ pain, sleep, and quality of life. Using a randomized placebo-controlled crossover study design, study participants were assigned to initially receive either traditional medical acupuncture or sham (pretend) acupuncture. After the first cycle of true or sham treatment, the patients had a 2-week waiting period. Then those who had received sham acupuncture received true acupuncture, and those who had received true acupuncture received sham acupuncture. Thus, all participants had a chance to benefit from the therapeutic approach.

To help us determine acupuncture’s efficacy in improving CF patients’ pain, we measured each participant’s pain before and after each treatment and on each day of the study between treatments. We also measured participants’ sleep duration and sleep quality. To more broadly evaluate important quality of life measures, such as fatigue and energy level, we used the Cystic Fibrosis Quality of Life Questionnaire. We are now in the data analysis phase and anticipate our pilot study’s completion at the end of summer. We greatly appreciate the support of the Tracie Lawlor Trust for CF and its many wonderful supporters and hope our work will contribute to the well-being of young people with CF.

Ann Ming Yeh, MD, Assistant Professor of Pediatrics–Gastroenterology
Ann Ming Yeh, MD, Assistant Professor of Pediatrics–Gastroenterology

 

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*The opinion(s) expressed herein are the sole opinion of the author are not necessarily the opinion(s) of the Tracie Lawlor Trust. Always consult your physician and healthcare team before making any changes to your medical regime. For information purposes only not to be considered medical advice. Please see Disclaimer

– See more at: http://www.tracielawlortrust.com/category/complementary-intergrated-medicine/#sthash.lRiauVIk.dpuf

Dutch Magic Factory – Sam’s Story –

*Sam’s journey toward CF complementary and integrative medicine is told here in her own words, be sure to check out her blog for more updates and news http://dutchmagicfactory.blogspot.ie/ We at the TLT4CF are grateful for Sam for letting us share her story to inspire other parents to empower themselves with knowledge and work together and you never know…. 🙂

How it all began

J was born through a C-section and was fed formula from birth as I was unable to breast feed due to complications and a large amount of antibiotics I was receiving. During this period J was progressing fine weighing about 8 kg and then at 6 months we changed formula and almost immediately he began to lose weight, began getting regular colds and general running nose, along with diarrhoea, his doctors prescribed him asthma medication and allergy meds but still his weight was not maintained.

Sam

After about the year mark finally he reached his original 8kg again. I switched to Soy Formula and he gained 2 kilos within the month, I noted his airways started to clear, his runny nose decreased and amazingly we were able to stop all asthma and allergy meds. I personally had suspected a food allergy to the other cow’s milk based formula and I began to cautiously add regular foods. The less soy he was getting the more we began to notice strange smelly diapers or oily stools with orange spots and they just looked very strange, nothing I’d ever seen before. Of course I immediately searched the net and consistently came across Cystic Fibrosis which began to ring alarm bells so I brought J to visit our paediatrician where a blood sample was taken for CF mutations and a stool sample test was done for Giardia infection (an infection known to cause malabsorption).

The Giardia tests came back positive and I was for the moment relieved, in a way to hear it wasn’t CF and just treatable infection. After some time visiting J’s doctor for a check-up to see if the Giardia infection had cleared, the test results were back on the CF mutations. Only one mutation had shown in the test (delF508) and I was told if no clinical symptoms of CF were present, then further testing was not needed. At that moment I was somewhat relieved but also confused could he still have CF? At the time my knowledge of CF was sparse and I began (again) to search on the internet to find out all I could. I found common symptoms J had such as salty skin and sweat crystals in his side burns after all the heat as we lived in Aruba at the time. It appeared to be sand but on further inspection they were actually salt crystals. The paediatrician thought it not necessary to do further testing, but I still had a mother’s instinct that something just wasn’t right and I needed to be sure, so we made an appointment in Miami Children’s Hospital for further testing, where we then learned that J had CF… He was two years old at the time.

Genistein

We were in shock and devastated and like all parents. I went through a range of emotions: fear, anger, despair but quickly I decided the best route was to learn all I could about this disease and try as to the best of my ability to keep my son as happy and healthy as possible until some kind of medication would become available.

I took in information on his genetics learning he had a “gating” mutation of S1251N and another common mutation delF508. I made a conscious decision to keep an open mind to all possibilities, to learn and garner all the knowledge I could and maybe I could put something together, after all knowledge is power but an open mind to this knowledge is even more powerful!

I began to rack my brains on what had helped J over the years so far to keep him well or improve him when he had gone through a bad patch, one notable thing was the soy formula (Nutrilon brand). So I began to investigate further, what was in there that could help so much? What made him so healthy and gain weight within that month we switched? Then I read about Genistein and CF and it was almost one of my eureka moments where in my mind it was clear this must have had an effect and I began to give him Genistein, in the form of a food supplement.

Curcumin

Further hours of research I came across Curcumin for CF and taking the safety profile of any supplement I gave J into consideration, I added this to his regime. We mixed Curcumin and Genistein everyday with applesauce and added his enzymes, which he was not a huge fan of the taste but he took it for us.

Sam & J

In 2012 the Curcumin the manufacturer changed the packaging of the brand of Curcumin we always bought and I accidentally and unknowingly ordered the wrong Curcumin which contained no piperine (a black pepper extract added to enhance absorption, thereby making Curcumin more bio-available). Within a day or two J’s stools were very bad and we had no idea why. We racked our brains and went through everything from his food, enzymes to the timing of his enzymes and even increasing them but nothing we tried worked over the next few weeks, until one day we gave a second capsule of Curcumin and the stools improved within the day. At the time we were certain Curcumin was doing wonderful things for him. It wasn’t until three months later  (I know for all my observational skills this one slipped!), I was facing the packaging and while eating a bowl of cereal I decided to read the packaging (as you do) and I suddenly noted that the capsules we had been using had no piperine with the Curcumin!

Almost immediately when he was back on the Curcumin with piperine things improved tremendously and we were more reassured that this combo was doing something for him. We noted something new happening which was a “wet cough” which we thought had to get treated with antibiotics and it made us wonder if for the period he didn’t have piperine with Curcumin did this leave him susceptible to infection? Or it may just have being coincidence but over time and through my blog I’ve learned from others taking and giving the combo of Curcumin and Genistein that they too reported a typical “wet cough” with every typical dose increase, which may be caused by better hydration of the lungs and perhaps a balance of the CFTR within the lung? Thankfully it also subsides within a few days or weeks depending on the amount of increase or the amount of “old mucous” the particular CF patient has to clear from their lungs. To my amazement and strangely the only journal I have a subscription to published an article of the synergistic potentiating effect of the combo by TC Hwang, which again reaffirmed my belief that this was the way forward. Of course this was in G551D mutation not the S1251N that J has but by that time, I’d done enough research to understand that the S1251N defect is similar to G551D and likely the combo would work well for S1251N mutation also.

We have noticed that dissolving Curcumin in hot (soy) milk improves absorption. We microwave about 30ml to boiling point, take it out of the microwave, open one Curcumin capsule, poor it into the milk. Stir, strain a few times, and stir some more until all is dissolved, than mix it into 200ml of chocolate milk (hot or cold). If a seven year old drinks it without complaints, it must be palatable for most everyone. Another idea might be dissolving Curcumin in a cup of hot soup. But this pre-dissolving is not necessary. Just taking a little more Curcumin would give you the same added effect.

Results –!!! —!!!

Finally the results so far are amazing!!

All the family

The latest sweat test came back at 59mmol/L!! We’re below the magic 60!

How the sweat test is used for diagnosis of CF:

Less than 40 = no CF

Between 40 and 60 = inconclusive

More than 60 = CF

Our sweat test history:

At diagnosis in Nov 2008: 118mmol/L (no Curcumin or Genistein)

May 2013: 90mmol/L (1000 mg Curcumin and 50 mg Genistein)

Feb 2014: 59mmol/L (3600 mg Curcumin and 150 mg Genistein)

(See Sam’s full blog on this topic http://dutchmagicfactory.blogspot.ie/)

Some might think a drop in sweat chloride levels could be a coincidence or something that can happen spontaneously. It doesn’t. I did not pay attention in Statistics class on how to calculate the chance that this is a coincidence, but if I’d had to guess it would be p=0.000andalotmorezeros1. This doesn’t just ‘happen’ in CF. Below are some graphs from scientific research articles on the new medication (Kalydeco/VX770)) for CF that corrects the underlying defect. You’ll see that the drop in sweat chloride we have found (minus 59mmol/L) is even greater than what is seen on 150mg of Kalydeco. (Please note that the drop from 118 to 59, is coincidentally the same as the absolute result of the sweat test, which is also 59)

All in all, it’s completely experimental. Yes, there is scientific evidence it works in a laboratory setting (‘in vitro’) and on living human cells (‘ex vivo’), but we absolutely don’t know what happens in the CF body (‘in vivo’) after taking this combination of supplements.  There is nothing I can say about safety, except for my son taking no more than the daily recommended dose of both supplements (adjusted for his weight) for the last 5 years and noticing no ill effects. Only recently, after discovering the fact that Curcumin and Genistein can really can correct the underlying defect in CFTR function, we have gone up to a much higher dose, while keeping a close eye on J for any side effects.

What else do we do?

Of course we don’t solely rely on a single thing to keep J healthy we also do multiple other things such as a no shoe policy in the house and a laughing policy!! Big belly laughs as much and as often as we can!

We don’t do physical therapy or airway clearance we prefer to do lots of exercise as a family and have a trampoline outside, along with many other toys which we all play with, all of which involve active participation and when it’s cold out we have the X-box kinect for indoor exercise with lots of encouragement and activity that involve movement and breaking a sweat! We also had a mattress upstairs in J’s bedroom we would all jump around and dance like a mad house to music for hours but once we noticed the ceiling below the room cracking we thought we better all stop jumping in the same spot, just in case! All in all we believe our healthy lifestyle and eating habits play another large role in keeping J healthy and of course the whole family. In a sense we all learned and benefit from the disease in a way…

Sam

The most fantastic news has just come in! We have received funding for a clinical trial with Curcumin and Genistein for S125N patients in Holland! I am proud to be able to tell you that as ‘the spiritual mother’ of this supplement combination (that’s what they called me…), I have been invited to become a  member of the Patients’ Advisory Board of the trial alongside a number of the specialists (adult and paediatric) and a representative of the Dutch CF Foundation. Of course this story is ‘to be continued’ when the results are in! Fingers crossed it will show the same efficacy for  other patients as it done for J!

If anyone has tried, or is going to try these supplements, I would love to hear from you! Please send me an e-mail at curcumingenistein@yahoo.com

http://dutchmagicfactory.blogspot.ie/

 

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*The opinion(s) expressed herein are the sole opinion of the author are not necessarily the opinion(s) of the Tracie Lawlor Trust. Always consult your physician and healthcare team before making any changes to your medical regime. For information purposes only not to be considered medical advice. Please see disclaimer

TLT co-funded researcher at Harvard Uni tackles Pseudomonas aeruginosa resistance

 

By Sara Leiman post graduate student at Harvard University, USA

Pseudomonas aeruginosa infections are the leading cause of mortality for cystic fibrosis (CF) patients . Work over the past decade has demonstrated that the danger of P. aeruginosa infections rests not only in this bacterium’s genetic resistance to many antibiotics, but also in its propensity to live in a biofilm.  P. aeruginosa biofilms comprise a mixture of metabolically active and dormant cells encased by a self-produced exopolymer matrix.  The biofilm matrix has a drastic therapeutic consequence, magnifying the minimum inhibitory concentrations of antibiotics as much as 1000-fold when compared with free-living P. aeruginosa.  Improved strategies to treat and clear chronic P. aeruginosa infections must therefore overcome this protective exopolymeric barrier.  Importantly, while many factors contributing to P. aeruginosa have been identified – including quorum sensing molecules, the secondary messenger cyclic-di-GMP, and genes responsible for making matrix – the mechanisms by which these diverse components interact to establish a biofilm state are largely mysterious.

            To address the gaps in the current understanding of P. aeruginosa biofilm development, our studies have focused on uncovering novel components and interactions involved in Pseudomonas aeruginosa biofilm formation, maintenance, and disassembly.  Our approach has been unique in that we developed and implemented a new screen, based on biofilm morphology, which lends itself to the recognition of subtle biofilm phenotypes.  We conducted a transposon mutagenesis screen using a P. aeruginosa strain background in which the biofilm-inhibitory gene amrZ was deleted.  We have completed collecting and analyzing the biofilm morphologies of this transposon library and know the locations of the transposon insertions for the 62 mutants we selected using this screen. 

            The results of our screen include well-known biofilm-related genes, thus validating our method.  Our results also include uncharacterized genes as well as annotated genes whose roles in biofilm formation are unclear.  For both of these classes of results, we have constructed strains with directed mutations (deletions, complementations, and/or overexpressions) to verify the biofilm functions of the loci we have uncovered.  The biofilm phenotypes of these genes have been confirmed by a qualitative morphological screen as well as by a quantitative Congo Red-binding assay, a standard read-out of structured biofilm formation.

Sara Leiman (BSc) working at her lab bench, under the supervision of Professor Richard M. Losick at the department of molecular and cellular biology, Harvard University, USA

            Our group is currently focused on uncovering the mechanisms of action of two uncharacterized genes identified through our transposon mutagenesis screen.  The first gene encodes a putative TetR transcriptional repressor that has been previously implicated in quorum sensing.  Uncovering the mechanism of this protein may not only reveal its specific role in biofilm formation, but it may also elucidate how quorum sensing components may be leveraged for future anti-biofilm treatments.

            Our second gene of interest is a hypothetical protein with structural similarity to a known P. aeruginosa cyclic-di-GMP-binding protein.  Cyclic-di-GMP levels are positively correlated with biofilm formation, though the precise signaling pathways by which this secondary messenger regulates biofilm formation remain unknown.  By identifying the localization and interaction partners of this putative cyclic-di-GMP-binding protein, we may be able to shed more light on the mechanisms driving biofilm formation in P. aeruginosa and find new targets for anti-biofilm compounds.

Our future directions are targeted to understanding the biochemistry of the two aforementioned genes as well as several other candidates from our transposon mutagenesis screen.  Among these efforts, we plan to measure and compare the intracellular cyclic-di-GMP levels of our mutants.  We also plan to implement pull-down assays, followed by mass spectrometry, to identify protein-protein interactions and complexes.  Overall, our goal is to combine our genetic manipulations of P. aeruginosa with biochemical analyses to yield a more refined picture of the P. aeruginosa biofilm formation process and facilitate the development of treatments for P. aeruginosa infections.

Further reading:
1. Kirov et al. (2007) Microbiology. 153, 3264-74.    
2. Foweraker. (2009) Br Med Bull. 89, 93-110.
3. Hill et al. (2005) J Clin Microbiol. 43, 5085-90.
4. Ellis T.E. et al. (2010) Infec and Immunity. 78(9), 3822-3831.
5. The Leeds Method of Management (2008) Intravenous antibiotics and Pseudomonas aeruginosa. Available from http://www.cysticfibrosismedicine.com
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Sara’s work was co-funded by the Tracie Lawlor Trust and Natural Health Research Institute . For more information on our ongoing research http://www.tracielawlortrust.com/research/

Integrative Care: A mother’s point of view.

By Louise Byrne

http://louisebyrnebooks.com/index.html

Ava Li was diagnosed in 2008, a week before I turned 40. She was our first and only child and although the news broke our hearts at the time, there was some element of relief to know that we had been correct all along in feeling that something was awry. Because there was no new born screening in Ireland then (it has since been introduced); she was 14 months old at her diagnosis. In those 14 months we had been in A&E twice; she had been on several courses of antibiotics and once we had been sent home by a ‘relief’ doctor with a pat on the head and told to buy a honey and lemon mixture to ease her cough.

I had always been a firm believer in alternative remedies and whilst I was content to give the first couple of antibiotics I got increasingly upset when I saw they were not working and I felt they were potentially damaging her young immune system.  I recall introducing Vitamins C and D and probiotics and noting a marked improvement in her health during that time. However, when the diagnosis came, I was shocked into doing everything the doctors said and because I knew very little about cystic fibrosis in the early days, I looked to them entirely for guidance and answers. 

However, in the following 16 months, I felt increasingly powerless and depressed; Ava Li was hospitalised twice with a total of three different sets of IVs and she was prescribed a further ten courses of heavy strength antibiotics for infections of varying grades.  Breaking point for me was the tenth antibiotic course which was for – as I discovered midway through the course – a scanty growth of staph aureus. At that point I realised I could not continue on the path we were on.  I felt that her immune system had to be capable of and allowed to fight some battles itself, and I realised I could not put her health entirely into the hands of prescribed antibiotics.  I had read, researched and cross examined all information relating to cf I could get my hands on. I realised that I had to regain control of my child’s health and steer a different course for our family. I would gratefully accept modern medicine at appropriate times, whilst utilising the generations of natural medicine, therapies and knowledge that had always been my basic instinct.

From the moment I made that conscious decision our lives changed for the better. I felt empowered and alive again. I reintroduced various vitamins, minerals and supplements that I would have used previously, I researched dosage, I googled cf with the words ‘good news’ attached, instead of ‘life expectancy’ or ‘severe mutations.’ I made contact with scientists who ha

Lou and Ava Li

d done research on various promising therapies e.g. silver and glutathione. I worked intuitively again and believed in my ability to make a positive difference.

Following these initial changes, Ava Li remained off antibiotics for 10 months until evidence of infection showed up on a chest x-ray. She was then antibiotic free for a further 23 months until a scanty growth of pseudomonas and, is currently 11 months hale and healthy. I usually dislike discussing or comparing periods without antibiotics as I understand everybody is different and nothing is certain or guaranteed – everything can change.  I use it here purely to display what I firmly believe was the difference my approach and attitude had on our daughter’s health and outlook.

The specific changes I made at that time are as follows:

Diet: I began daily juicing organic fruit and vegetables, included daily portions of raw, unprocessed food, kept sugar intake to a minimum and removed most dairy (we still do limited amounts and try to veer towards goat dairy whenever possible).

Supplements: we added daily Vit C, D, selenium, probiotics and glutathione.

Exercise: We make a huge effort to incorporate elements of fun exercise. Currently Ava Li has running, swimming, dance and dog walking incorporated into her week!

Attitude: This is arguably the most vital element of all for me. I believe we are truly lucky and have an immense debt of gratitude. I also believe that we have control over our bodies, minds and health. It is not that I think we will not suffer or become ill at times. Rather, it is a belief that we have more ability to deal with those challenges that we often give ourselves credit for, and that our physical, emotional and spiritual bodies have an immense healing capacity which we need to nurture and develop.

Of course I still have times of worry, doubt and anxiety, but I attempt to recognise those times as a human condition rather than weaknesses!  I gratefully recognise western medicine and the benefits and advances it brings to our world. However, I also feel that western medicine owes much of its foundations and many future endeavours to nature, yet it often displays little respect or awareness of this and is too often solely profit driven. In Karmic terms alone this can’t continue; it is not possible to continually take from one source and repay with disrespect and self-serving greed. It is therefore unthinkable for me to allow my daughter’s future to be entirely in the hands of western medicine.

I truly believe that as a global community we need to begin to see the natural healing and life giving properties of our universe, and ourselves, and gratefully recognise the benefits that a holistic approach to health and living brings.   

I believe that by raising our daughter with a healthy awareness, empathy and respect towards all living things, she will be well armed to rise to whatever challenges she may meet along her path.

 I see her as a strong and healthy child. I make a conscious effort to believe in the power of myself; so that she can believe in the power of herself.

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This story was kindly re-published with the consent of our Uk friends at http://dearcf.com/. Louise Byrne has authored two books specifically for children with Cystic Fibrosis, in particluar she has received notable media attention from her book “Can you see what I see?”, which she decidated to her mother, a book that no doubt encapulates Louise’s own ‘Zen’ positive philosophy. Read more on her book here!  The information contained herein is for information purposes only and is not to be taken as medical advice. Always consult your doctor or healthcare professional before making any changes to your medical regime. Notice Disclaimer

Buteyko breathing method – an aid to improving gas transfer in Cystic Fibrosis

Cystic Fibrosis is a condition that mainly affects the respiratory and digestive systems in the human body. The CFTR (cystic fibrosis transmembrane conductance regulator) is a protein found in the human body that regulates the movement of salt ions and water across membranes in the body. The CFTR gene is responsible for the expression of the CFTR protein. A mutated gene sequence of the CFTR gene results in the expression of a mutated CFTR protein – resulting the creation of a mucus layer in the respiratory tract and the digestive system which in turn results in a blockage in the movement of ions and water mainly in epithelial cells that line the lungs and pancreas of the digestive system – the condition known as Cystic Fibrosis.

One of the main complications involved in Cystic Fibrosis is the difficulty in breathing and general lung function due to the layer of mucus that lines the airways. Up to the present day, many studies have been conducted into various mechanisms of improving the gas transfer capabilities in people with cystic fibrosis. These mechanisms are physical, chemical and enzymatic. To date there have been minimal studies of using natural methods to improve lung function in people with Cystic fibrosis. In recent times however, a new breathing technique – Buteyko breathing, has come to the fore in the alleviation of symptoms of different respiratory conditions. This paper will discuss and present a case for the employment of the Buteyko breathing method as an aid in the improvement and management of lung function in people with Cystic Fibrosis. Click here for more!

Groundbreaking research could improve lives of people with Cystic Fibrosis

Groundbreaking new research into the potential health benefits of a martial art could help
improve the lives of youngsters who have one of the most common hereditary lifethreatening diseases in Britain and Ireland.
The study will explore how tai chi can help people with cystic fibrosis to manage their condition and enjoy a better quality of life.
Professor Nicola Robinson, an academic Press Release