Tag: TLT4CF

Empower, educate and inform on integrative medicine for Cystic Fibrosis

Mind-Body in-depth COVID-19 (P.3)

Here we will take a look deeper into the evidience and how we can use mind body techniques during SARS-CoV-2 outbreak and beyond that may help improve a person with Cystic Fibrosis (PWCF) mental health.

Information COVID-19

Sources: HSE, Departments of Health, ECDC

Complementary Symptom Management for Cystic Fibrosis (for healthcare professionals)

This booklet summaries the evidence into a systems approach addressing the most commonly affected organs in those with CF and provides some complementary management options which may be effective. The booklet also ventures into CF related diabetes occurring more often and becoming a significant burden within the CF community.

Research into Acupuncture for the Treatment of Cystic Fibrosis in Teenagers and Young Adults

Up to 59% of patients with Cystic Fibrosis (CF) experience significant pain and discomfort that may decrease their quality of life. The research we are conducting at Stanford University School of Medicine and Lucile Packard Children’s Hospital Stanford, generously funded by the Tracie Lawlor Trust for CF, is investigating whether acupuncture can help teens and…
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Dutch Magic Factory – Sam’s Story –

*Sam’s journey toward CF complementary and integrative medicine is told here in her own words, be sure to check out her blog for more updates and news http://dutchmagicfactory.blogspot.ie/ We at the TLT4CF are grateful for Sam for letting us share her story to inspire other parents to empower themselves with knowledge and work together and…
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TLT co-funded researcher at Harvard Uni tackles Pseudomonas aeruginosa resistance

  By Sara Leiman post graduate student at Harvard University, USA Pseudomonas aeruginosa infections are the leading cause of mortality for cystic fibrosis (CF) patients . Work over the past decade has demonstrated that the danger of P. aeruginosa infections rests not only in this bacterium’s genetic resistance to many antibiotics, but also in its…
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Journey into Integrative Medicine – Mika McDonald

Mika, a 26 year old ecologist and student of herbalism shares in her own words, her journey with Cystic Fibrosis and integrative medicine. In many ways, CF has been a great gift, though one with many struggles and hardships. I have gained so much intellectually and spiritually from this disease, and there is no question…
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Patient’s Assistance Fund

Tracie Lawlor Trust Patient Assistance fund was set up to directly help Cystic Fibrosis (CF) patients avail of integrative treatments. The fund has helped purchase treatments for CF’s ranging from exercise bikes, gym memberships, to acupuncture and supplements, all of which have aided in improving the quality of life for people with CF. Recently the…
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Tai Chi and Clare

Tai Chi and Clare Meleady  *About Tai Chi and how it helped you??* From doing tai chi I have noticed many things that have changed in my life and in my body and mind. The most important is that I have become more aware of my breath and breath deeper then I would have previous.…
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Integrative Care: A mother’s point of view.

By Louise Byrne http://louisebyrnebooks.com/index.html Ava Li was diagnosed in 2008, a week before I turned 40. She was our first and only child and although the news broke our hearts at the time, there was some element of relief to know that we had been correct all along in feeling that something was awry. Because…
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