Cystic Fibrosis is a hereditary disease which (mainly) affects the glands, lungs, pancreas and digestive tract. One in nineteen people are carriers and if both parents are carriers there is a one in four chance that they will have a child with CF. Ireland has the highest rate of Cystic Fibrosis in Europe. People with CF undergo a daily routine of medication and physical therapy. The TLT4CF was set up to empower, inform and help maintain CF’s health and quality of life. For a simple explanation see the you tube video , the second video (below) contains a more detailed overview of the CFTR.

The TLT4CF do not take a wage or salary from any donation received, we believe a charity should be just that & not run as a non-profit limited company (CEO driven) as this leads to a clear elitism in the people getting the wage versus the people actually giving their time & effort without cost then seeing their hard earned donations removed for a wage or otherwise, while they watch their children suffer with lack of facilities, equipment etc. The TLT do not play politics with lives. True Charity comes from the heart…

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For a visual of the disease see link: http://video.about.com/cysticfibrosis/Cystic-Fibrosis.htm