Cystic Fibrosis is a hereditary disease which (mainly) affects the glands, lungs, pancreas and digestive tract. One in nineteen people are carriers and if both parents are carriers there is a one in four chance that they will have a child with CF. Ireland has the highest rate of Cystic Fibrosis in Europe. People with CF undergo a daily routine of medication and physical therapy. The TLT4CF was set up to empower, inform and help maintain CF’s health and quality of life. For a simple explanation see the you tube video , the second video (below) contains a more detailed overview of the CFTR.
The TLT4CF do not take a wage or salary from any donation received, we believe a charity should be just that & not run as a non-profit limited company (CEO driven) as this leads to a clear elitism in the people getting the wage versus the people actually giving their time & effort without cost then seeing their hard earned donations removed for a wage or otherwise, while they watch their children suffer with lack of facilities, equipment etc. The TLT do not play politics with lives. True Charity comes from the heart…
Please take the time to sign our guest book. We’d love to hear what you think!
For a visual of the disease see link: http://video.about.com/cysticfibrosis/Cystic-Fibrosis.htm