Cystic Fibrosis is a hereditary disease which affects the glands, lungs, pancreas and digestive tract. One in nineteen people are carriers and if both parents are carriers there is a one in four chance that they will have a child with CF. Ireland has the highest case of Cystic Fibrosis in the world and yet the life expectancy of those with this disease is in the mid twenties compared to that of Northern Ireland or Britain which is in the mid thirties. This is because Ireland has no dedicated CF units. CF sufferers undergo a daily routine of medication and physical therapy. The lack of facilities in Ireland to cope with their medical and physical needs is unacceptable. The Tracie Lawlor Trust was set up to give Cystic Fibrosis sufferers around Ireland a better chance.
The TLT4CF do not take a wage or expense from any donation received, we believe a charity should be just that & not run as a non-profit limited company as this leads to a clear elitism in the people getting the wage versus the people actually giving their time & effort without cost then seeing their hard earned donations removed for a wage or otherwise, while they watch their children suffer with lack of facilities, equipment etc. The TLT do not play politics with lives. True Charity comes from the heart…
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