Tag: Cystic Fibrosis

Empower, educate and inform on integrative medicine for Cystic Fibrosis

Cystic Fibrosis – An Integrative Approach – by Lydia Daly

As a 20 year old CF sufferer, I have spent my fair share of time in and out of hospitals from a young age. I was diagnosed, later than normal, at the age of 5. I was wrongly diagnosed with asthma by my GP at the age of 3 and attended an asthma clinic until…
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Buteyko breathing method – an aid to improving gas transfer in Cystic Fibrosis

Cystic Fibrosis is a condition that mainly affects the respiratory and digestive systems in the human body. The CFTR (cystic fibrosis transmembrane conductance regulator) is a protein found in the human body that regulates the movement of salt ions and water across membranes in the body. The CFTR gene is responsible for the expression of…
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Groundbreaking research could improve lives of people with Cystic Fibrosis

Groundbreaking new research into the potential health benefits of a martial art could helpimprove the lives of youngsters who have one of the most common hereditary lifethreatening diseases in Britain and Ireland.The study will explore how tai chi can help people with cystic fibrosis to manage their condition and enjoy a better quality of life.Professor…
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A Path Less Conventional

I was born with Cystic Fibrosis and lost my younger brother to this life threatening genetic condition. For over quarter of a century I was a mind numbing robotic disciple of Western medicine, bowing to the latest wonder drug to improve aerosol respiration to improving my weight levels to staving off infections. I was a walking pharmacy. I complied with everything the CF team presented me with and duly embraced their treatments of Cystic Fibrosis without thought or question. Just thinking that it will keep me strong and good life force, gave me no reason to rock the proverbial boat. As I got older though, I started to become prone to more and more chest infections, no longer were oral antibiotics hitting and nipping the infection in the bud. From oral medications, I was now being treated more and more through the use of Intravenous antibiotics. The use of intravenous medication started becoming a bi-annual affair.

End of Year 2010 for the TLT4CF!

This year has being a whirlwind of new & old events for the Tracie Lawlor Trust for Cystic Fibrosis. A few new events went a head this year, Olive Mcgraths “Tracie’s walk” in which 70 people walked from Castlebridge to Wexford town, along it’s beautiful keys & half foot-paths on the way in.

Charity Challenge 2010

This year’s charity challenge took place on the 25th of April. Nine teams of four set out on this gruelling run, row & cycle. Spirits were high before the teams set off, a few kind words of encouragement & indeed a few pranks as one girls team decided to “jock” the opposing boys team member before they set off! The poor lad took off & kept pulling up his shorts almost to chest hight, just to be sure they weren’t going anywhere this time.

Roscrea Head Shave by Maria Phlean

We organized a fundraiser in the stand pub Roscrea Co. Tipperary on the 16th of April 2010. It consisted of five people getting their head shaved, 3 lads & 2 girls took part. A man who hadn’t shaved his beard in 22 years also decided to shaved bare for a great cause!

Cupcake & Cookie Tea Party by Rebecca Gangnus

Sunday the seventh of March saw the first TLT Tea Party (of many we hope) held in the Sky and the Ground, South Main Street, Wexford. There was a lovely buzz in the side bar as an amazing array of cupcakes, cookies and cakes in all shapes, sizes and colour combinations were donated by the…
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Nicky Rossiter’s “The Street’s of Wexford” by Celestine Rafferty

“We all wanted to pinpoint our place. In reality we need to invert that address to find our place. Apart from the most intimate sense of place of family and home, the street is our reference point or it may be the townland for rural dwellers. The street defined friendships, loyalties and often boundaries. In…
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Irish Cycle 2008 by Sarah Murphy

On Saturday 5th April 2008 about 130 cyclists set off from UCD in Dublin for a 140 km Charity Cycle to raise much needed funds and awareness for Cystic Fibrosis sufferers. The event was dedicated to the memory of the late Tracie Lawlor who passed away last November from Cystic Fibrosis.