Here we will take a look deeper into the evidience and how we can use mind body techniques during SARS-CoV-2 outbreak and beyond that may help improve a person with Cystic Fibrosis (PWCF) mental health.
It is of utmost importance to consult with your healthcare team if you have any symptoms of COVID-19 (refers to the disease, SARS-CoV-2 refers to the virus itself see here), it is also as important during this time to ensure you take all medications prescribed, do your air-way clearance and exercise, get a good nights… Read more
This booklet summaries the evidence into a systems approach addressing the most commonly affected organs in those with CF and provides some complementary management options which may be effective. The booklet also ventures into CF related diabetes occurring more often and becoming a significant burden within the CF community.
Up to 59% of patients with Cystic Fibrosis (CF) experience significant pain and discomfort that may decrease their quality of life. The research we are conducting at Stanford University School of Medicine and Lucile Packard Children’s Hospital Stanford, generously funded by the Tracie Lawlor Trust for CF, is investigating whether acupuncture can help teens and… Read more
By Sara Leiman post graduate student at Harvard University, USA Pseudomonas aeruginosa infections are the leading cause of mortality for cystic fibrosis (CF) patients . Work over the past decade has demonstrated that the danger of P. aeruginosa infections rests not only in this bacterium’s genetic resistance to many antibiotics, but also in its… Read more
Mika, a 26 year old ecologist and student of herbalism shares in her own words, her journey with Cystic Fibrosis and integrative medicine. In many ways, CF has been a great gift, though one with many struggles and hardships. I have gained so much intellectually and spiritually from this disease, and there is no question… Read more
Tracie Lawlor Trust Patient Assistance fund was set up to directly help Cystic Fibrosis (CF) patients avail of integrative treatments. The fund has helped purchase treatments for CF’s ranging from exercise bikes, gym memberships, to acupuncture and supplements, all of which have aided in improving the quality of life for people with CF. Recently the… Read more
By Louise Byrne http://louisebyrnebooks.com/index.html Ava Li was diagnosed in 2008, a week before I turned 40. She was our first and only child and although the news broke our hearts at the time, there was some element of relief to know that we had been correct all along in feeling that something was awry. Because… Read more
CF MUDDA – My StoryBy – Faye Upston http://cfmudda.blogspot.ie/ So my life began much like anybody else on Aug 5th 1980. I am the youngest of 4 siblings. My parent had me vaccinated at 6 months old for measles, mumps & rubella. Everything changed from that point on. I became ill, very ill. Hospitalised for… Read more