Charity Number: CHY 18193
Books
Cystic Fibrosis in My Family
This, the third book in a series written by Eleanor Walsh (see below for more info). The book is narrated by Robert, brother of Tim and Lucy who suffer from cystic fibrosis. Robert goes through how he and his family cope with cystic fibrosis. It deals with his negative feelings towards his siblings, how learning about CF can help, through to why learning about infection control is so important and ways to make life easier for everyone!
This book will help non-CF siblings to cope with CF in the family.
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What you will read inside!
• Introducing me!
• What CF means to me
• Negative feelings are normal
• Mam spends time with me
• I love to ask questions
• Helping make treatment fun!
• When Tim and Lucy are at the CF clinic
• When they are in hospital
• Why I need to know about germs
• Fun with Tim and Lucy
• Keeping us all sane
• How much do you know about CF?
• My non-CF sibling quiz
Eleanor will donate 100% of the royalties for her third book "Cystic Fibrosis in My Family" to the Tracie Lawlor Trust for Cystic Fibrosis.
About the author: Eleanor Walsh suffers from cystic fibrosis. She previously worked as a lab technician, a donor attendant in the Blood Transfusion Service and as a dental nurse before starting to write books on CF. These series of books are designed to educate children and teens about CF and help them understand how the treatments work. Written in plain, clear and easy to read language, these are sure to be an asset to any CF, family or friends
Cystic Fibrosis Explained for Children
About the Book
Tim and Lucy are two children with cystic fibrosis. If you are a child with CF, they will help you understand it by explaining how CF affects them and how their treatments work. If you are a child with a parent, sibling or friend with CF, Tim and Lucy can help you understand why they are sick.
What you will read inside!
• Introducing Tim and me
• CF and daily treatments
• Keeping a food diary
• Why we take supplements
• Tube feeding
• CF related diabetes
• Liver disease
• Going to the CF clinic
• Treatment in hospital
• What is a portacath?
• Cross infection control
• Staying healthy
• Tim’s CF quiz
All the royalties from the sale of this book will go to the Cystic Fibrosis Association of Ireland and Cystic Fibrosis Worldwide
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Cystic Fibrosis Transition Programme for TeensThis programme was designed by an adult who suffers from cystic fibrosis, to help teenagers transition smoothly into adult CF care. By following the programme, each patient will learn, step by step, how to take full responsibility for their own health. It is a gradual process, so patients can progress slowly and feel confident before moving to adult care. Parents can also follow their progress and therefore, slowly decrease the responsibility they have over their teen’s health. This programme should in turn make life easier for the new CF team, when dealing with teens, as they will have been prepared for adult care. 50% of the royalties from the sale of this book will be donated to CF Worldwide.
Contents • Tim & Lucy discuss the transition programme * Eleanor will be donating 50% of the royalties of the transition book to Cystic Fibrosis Worldwide.
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