Eleanor Walsh

Eleanor Walsh supports the Tracie Lawlor Trust by donating 100% of the royalties of ‘Cystic Fibrosis in My Family‘ and ‘Cystic Fibrosis Doesn’t Stop Our Parents‘, (see last two books below).

On Eleanor’s books Professor Charles Gallagher commented: “I am so impressed at Eleanor Walsh’s outstanding books. They are extremely helpful for people with Cystic Fibrosis , their families and friends, and for anyone interested in CF. They present essential information and great insights in a very practical, relevant and comprehensive format. They should be required reading for Cystic Fibrosis teams and all health care providers looking after people with CF.

Eleanor’s books are a master class in how relevant information should be provided to people with chronic illnesses and their families. These books are an example of the great bravery and determination of people with CF. To quote Annie Lennox, “People with CF are doing it for themselves”.

Professor Charles Gallagher
St. Vincent’s University Hospital, Dublin 4, Ireland. National Referral Centre for Cystic Fibrosis

About the Book
Tim and Lucy are two children with cystic fibrosis. If you are a child with CF, they will help you understand it by explaining how CF affects them and how their treatments work. If you are a child with a parent, sibling or friend with CF, Tim and Lucy can help you understand why they are sick.

Book coverWhat you will read inside!

• Introducing Tim and me
• CF and daily treatments
• Keeping a food diary
• Why we take supplements
• Tube feeding
• CF related diabetes
• Liver disease
• Going to the CF clinic
• Treatment in hospital
• What is a portacath?
• Cross infection control
• Staying healthy
• Tim’s CF quiz

 

All the royalties from the sale of this book will go to cfai and Cystic Fibrosis Worldwide

Tim’s CF quiz
True or False

Tim
1. Some children call CF 65 roses

2. Coughing up excess mucus usually means you have a chest infection

3. Mucus is easier for children with CF to cough up

4. Children with CF usually need enzymes to digest their food

5. Having CF means you can’t develop diabetes

6. Physiotherapy and exercise are important parts of your treatment

7. You don’t need to do your nebuliser everyday

 
 

 

Cystic Fibrosis Transition Programme for Teens

This programme was designed by an adult who suffers from cystic fibrosis, to help teenagers transition smoothly into adult CF care. By following the programme, each patient will learn, step by step, how to take full responsibility for their own health.

It is a gradual process, so patients can progress slowly and feel confident before moving to adult care. Parents can also follow their progress and therefore, slowly decrease the responsibility they have over their teen’s health. This programme should in turn make life easier for the new CF team, when dealing with teens, as they will have been prepared for adult care. 50% of the royalties from the sale of this book will be donated to CF Worldwide.

Book cover

Contents

• Tim & Lucy discuss the transition programme
• How the programme works
• A look at where you’re at now
• Getting started on the programme
• Sexual health and reproduction
• Taking care of your medical needs at home
• GP and pharmacy visits
• Handy tips for your hospital stay
• Changing your CF clinic routine
• Complications of CF
• Worries about transition
• Meeting the new CF team
• Keeping in touch with friends
• Helping your parents let go
• Programme complete!
• Treatments timetable

* Eleanor will be donating 50% of the royalties of the transition book to Cystic Fibrosis Worldwide.

 

Cystic Fibrosis in My Family

This book is narrated by Robert, brother of Tim and Lucy who suffer from cystic fibrosis. Robert goes through how he and his family cope with cystic fibrosis. It deals with his negative feelings towards his siblings, how learning about CF can help, through to why learning about infection control is so important and ways to make life easier for everyone!
This book will help non-CF siblings to cope with CF in the family.

Book cover

What you will read inside!

• Introducing me!
• What CF means to me
• Negative feelings are normal
• Mam spends time with me
• I love to ask questions
• Helping make treatment fun!
• When Tim and Lucy are at the CF clinic
• When they are in hospital
• Why I need to know about germs
• Fun with Tim and Lucy
• Keeping us all sane
• How much do you know about CF?
• My non-CF sibling quiz

 

Eleanor will donate 100% of the royalties for her third book “Cystic Fibrosis in My Family” to the Tracie Lawlor Trust for Cystic Fibrosis.

Cystic Fibrosis Doesn’t Stop Our Parents

Book cover
Kid

About the Book

This book is narrated by cousins Rory and Lisa. They each have a parent who has cystic fibrosis. They talk about CF treatments fitting in with family life, how they cope with a parent in hospital, to learning about CF and doing things together as a family. There are also multiple choice questions and activities to help make learning fun!! This book will help children with a parent who has CF.

What you will read inside!

  • Introducing us!                                                                               
  • What does treatment involve?                                               
  • When hospital treatment is needed                   
  • Enjoying time with our parents                                              
  • Learning about CF                                                        
  • Dealing with treatments                            
  • What happens at the CF clinic                               
  • Keeping active with CF                                                            
  • Why learn about germs?                                          
  • Doing things together                                                                                                
  • Questions and activities

This book was kindly sponsored by the Tracie Lawlor Trust for Cystic Fibrosis. All the royalties from the sale of this book will go to the TLT4CF.

 

FEEDBACK! Would you like to contact Eleanor and tell her how you liked her books? eleanormwalsh (at) yahoo.ie